Update

The maintenance drugs are much easier handle. There haven't been any side affects that I have noticed. It's been a week since I had the first dose of maintenance drugs and I am feeling pretty good. I am getting my energy back, and I am much more active now than I have been in the last 5 months. I was out in the yard doing some yardwork the last two days and my whole body is sore. I think my inacitivity over the past 5 months has taken a toll. I need to get out and rebuild the muscle mass that I have lost and get some exercise. I get tired pretty quickly and the shortness of breath limits how ambitious I can get, I have to pace myself.
The hair on my head is getting longer, however it's very soft and thin. It's not as it was. I am considering shaving it off again until it's ready to come in more fully. The hair on the rest of my body has not started growing back yet.
The doctors appointments will slow down for now. I don't have to go in for regular bloodwork or checkups. I only have to go in once every three weeks for more maintenance drugs. We're hoping we can stay on this regime for a long time to come. Take care. -Eric