Tuesday, February 9, 2010

updates

It's been a while since I last posted. We have been awaiting the next scan results. I went in for a CT scan and an MRI last week, and we got the results yesterday. The MRI of the head showed that one spot has grow a little more, not significantly, but enough to notice. We are not going to change any treatments right now but we are going to shorten the scan cycles to every two months , instead of every three months, in order to get more frequent looks at the progress. The CT scan of the chest/neck/abdomen was hard to read due to all the fluids built up around my lungs. Yes I accumulated a lot more fluids since my last thoracentisis that I had around Christmas time. I have significant shortness of breath and my blood/oxygen level is very low. (78 vs the ideal number of 100). This is low enough that they put me on oxygen at night. It is natural for anyones blood/oxygen levels to drop at night due to inactivity, but dropping from 78 and going lower could be very dangerous. I am going in for another thoracentisis today, and hopefully that will improve my blood/oxygen levels during the day, so that I don't have to be on oxygen during the day. The oxygen supply is a big fancy air filter that sucks air in through the back, super filters it, and pumps it into my lungs through my nose. I am not happy about being on oxygen, it means that things are getting worse, and not better, and it gives the impression that I am weak, and I don't like that. I agreed to go on it for two reasons. One: if i don't do it I could die in my sleep. Two: Monica threatened to beat me up if I didn't. Two good reasons. Take care. -Eric

3 comments:

jkhuber said...

So, do your doctors know what's causing the fluid to build up in your lungs? Do they have any plans to remedy it? I'm so sorry you have to deal with all this junk. You are strong. We love you.

Meridee said...

Tell Monica to alert us before she beats you up so we can get in some last words :) We are so sorry that you have to endure all this yuck. Will there be more frequent fluid extractions? HOpefully your family can get to Disney World sooner than later. We love you. Mom and Dad

Todd and Julie said...

No fun. I hope things will get better soon! We love you.